Patient Stories

Splashing in a pool was an experience Chris and Maeve never thought they would be able to do with their son, Freddie, who was given a tracheostomy at 10 months old. “He loved bath time in

"Phyllis Tuckwell has changed my life completely,” said Fred, who has lung disease. “Last November I went through a bad patch. I couldn’t see the light at the end of the tunnel. I wouldn’t

In the weeks leading up to Christmas in 2022, a devastating diagnosis changed life forever for Toby and his family. At the age of eight, doctors discovered Toby had adrenoleukodystrophy (ALD),

Wayne’s father, Fred, was referred to Phyllis Tuckwell by his GP, in August 2022.   “He initially went to the Beacon Centre, to see the Phyllis Tuckwell staff there,” said Wayne.

With Phyllis Tuckwell’s help, Glyn was able to spend one last Christmas at home, with his family. Every day, Phyllis Tuckwell supports over 250 patients, relatives and carers, and that

"Last Christmas was a time of immense sadness. This year, we have Shooting Star Children's Hospices by our side." Toby is supported by Shooting Star Children's Hospices. His mum, Fleur, wanted

Alan, one of Phyllis Tuckwell’s Living Well patients, was referred to their care after being diagnosed with stomach cancer. “Being told I had cancer and needed palliative care was a lot to

Beth was diagnosed with Dravet Syndrome when she was just four months old. Dravet Syndrome is a rare neurological condition that encompasses treatment-resistant epilepsy, intellectual disability

“We all concentrate on how we’re born, but we don’t think about how we’re going to die.” These words, from the wife of one of Phyllis Tuckwell’s patients, express the importance of how